Registries & Electronic Patient Files (EPFs)

There are many registries in healthcare that collect information about the effectiveness, safety or efficiency of healthcare. However, there are few registries that combine prospective clinical data with the patients' perspective measured by Patient-Reported Outcome Measures (PROMs) or even Computerized Adaptive Tests (CATs)

TiH develops innovative software solutions to gather and safely store data from questionnaires, laboratory results and clinical data in source documents without the need for superfluous procedures. TiH systems support single-entry, multiple-use of data by allowing automatic data-exchange between the hospital information systems and the TiH databases. The data can be reported at the patient-, hospital-, and population level and provides comprehensive insight into the quality, safety and efficiency of the healthcare provided.

Analysis of the data offers opportunities to monitor adherence to guidelines and quality of care. Benchmarking allows comparison of individual caregivers or institutions and can be used to start a cycle of improvement through clinical auditing. Furthermore, the data can be used to conduct scientific research into the quality, safety and efficiency of the healthcare provided.

For this, TiH develops electronic patient files (EPFs) that allow monitoring of individual patients and multiple data-entry. Caregivers as well as patients have access to this EPF, with individualized entry and authorization for each role; such as patient, (specialized) nurse, specialist, general practitioner. Modules for each specific role are developed in close collaboration with the users. The EPFs contain information on the diagnosis, prior and current treatments, treatment results, laboratory results and quality of life over time. Graphs illustrate the patient journey by providing information on the patient's health status, in relation to the patient's previous measurements and in relation to current and previous treatments. EPFs can support self-management when used by patients at home and facilitate patient-centered care and involvement of patients in medical decision-making when used during clinical visits. Finally, dedicated patient portals provide access to the EPFs and include general information about the diagnoses, possible treatments and health care providers.